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Workbook Resources

EXERCISE 3.1

Help Me Ask The Right Questions

Download Help me Ask the Right Questions for conversations starters you can use..

Available in English and French.

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EXERCISE 3.3

Help me Understand the Big Picture: Generic Symptom Roadmap

Download our blank Roadmap for Patients and Families and view our disease specific Roadmaps.

Available in English and French.

3.3-Generic Roadmap-Pg1-03-25-2025.png

EXPLORE ROADMAPS

EXERCISE 3.5

Help Me Draw the Trajectory of My Illness

Download the Illness Trajectory Template below.

Available in English.

3.5-IllnessTrajectory.png

EXERCISE 6.1

Map the Ripple Effect

Download Map the Ripple Effect worksheet below.

COMING SOON.

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EXERCISE 7.2

Identify Your Health Care Providers

Download the Identify your Health Care Providers to keep track of your teams.

Available in English.

7.2-IdentifyYourHealthCareProviders.png

EXERCISE 9.1

My Big Picture

Download My Big Picture- a useful tool to share with your providers all about you.

Available in English and French.

9.1-MyBigPicture.png

ROADMAPS

ALS Roadmap

Download our ALS Roadmap for Patients and Families.

Available in English and French

Symptom Roadmap November 19-ALS-V10.png

EXPLORE ROADMAPS

BOOK CLUB

Book Club Discussion Guide

Download our Book Club Discussion Guide to facilitate your very own book club!

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EXERCISE 3.2

What are some Practical Things to Think About?

Download What are Some Practical Things to Think about that shares key considerations.

Available in English and French

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EXERCISE 3.4

Help Me Prepare for Different Stages: Generic Planning Roadmap

Download our blank Roadmap for Patients and Families and view our disease specific Roadmaps.

Available in English and French.

3.4-Generic Roadmap-pg2 final.png

EXPLORE ROADMAPS

EXERCISE 4.1

Map Your Style (& Scoring Assessment)

Download Map Your Style with the Scoring Sheet below.

Available in English.

4.1-MapYourStyle-Pg1-V2.png

EXERCISE 6.2

Draft the Job Description

Download Draft the Job Description worksheet below.

COMING SOON.

24-111_HopeForTheBest_Workbook_F_FrontCover_v6_10March.png

EXERCISE 7.4

Keep Track of Your Medical History

Download Keep Track of Your Medical History to keep clear records.

Available in English.

7.4-IdentifyYourHealthCareProviders.png

ROADMAPS

COPD Roadmap

Download our COPD Roadmap for Patients and Families.

Available in English and French

EXPLORE ROADMAPS

ROADMAPS

Alzheimer's Roadmap

Download our Alzheimer's Roadmap for Patients and Families.

Available in English and French.

EXPLORE ROADMAPS

SEVEN KEYS

Seven Keys One Pager

Download our Seven Keys one pager to learn about the keys and how to use them.

Available for Patients & Families and Health Care Providers.

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